Who treats interstitial lung disease?
The experts of the Interstitial Lung Disease Clinic work closely with a multispecialty team that includes chest (thoracic) surgeons, radiologists, pathologists or other specialists as needed.
Is interstitial lung disease considered terminal?
Interstitial lung disease (ILD), especially idiopathic pulmonary fibrosis (IPF), is a fatal disease with a poor prognosis, and the therapeutic options are limited.
What does an ILD nurse do?
An interstitial lung disease specialist nurse can ensure that people with idiopathic pulmonary fibrosis, and their families and carers, receive all the information and support they need throughout the care pathway. This includes information about investigations, diagnosis and management.
Do inhalers help pulmonary fibrosis?
Inhalers Types and Uses There’s currently no cure for idiopathic pulmonary fibrosis (IPF). The main aim of treatment is to relieve the symptoms as much as possible and slow down its progression. There are a number of Inhalers available and are divided into two groups Relievers and Preventers.
What are the different types of interstitial lung disease?
Some types of interstitial lung disease include:
- Interstitial pneumonia.
- Idiopathic pulmonary fibrosis.
- Nonspecific interstitial pneumonitis.
- Hypersensitivity pneumonitis.
- Cryptogenic organizing pneumonia (COP).
- Acute interstitial pneumonitis.
- Desquamative interstitial pneumonitis.
- Sarcoidosis.
Can you live a long life with scarred lungs?
When you do your research, you may see average survival is between three to five years. This number is an average. There are patients who live less than three years after diagnosis, and others who live much longer.
What are interstitial lung diseases (ILDs)?
Interstitial lung diseases (ILDs) are a group of more than 200 different disorders that cause scarring in the lungs. Scar tissue in the lungs can make it harder for you to breathe normally. In ILDs, scarring damages tissues in or around the lungs’ air sacs and airways.
What does a clinical nurse specialist for interstitial lung disease do?
As the clinical nurse specialist for interstitial lung disease, my key role is supporting and educating patients and their families. Acting as a clinical resource for ward staff providing support and teaching
What causes ILDs in the lungs?
ILDs may be caused by your genes, medicines, or other medical conditions such as sarcoidosis and certain autoimmune disorders. Exposures to substances in the environment can also lead to some types of ILDs, including asbestos-related lung diseases and hypersensitivity pneumonitis.
What is the ILD clinical nurse specialist team?
Sarah Lines, ILD Clinical Nurse Specialist, is a Nurse Independent Prescriber Angela Thurgood, ILD Co-ordinator, collects referral information from your hospital and arranges the regional clinics The team also includes a Physiotherapist, Clinical Physiologist, and a research team. Clinics may be face to face, via video link or telephone.
